Following up on the first Workshop on the 9th November 2023, the EJP RD will be running an online workshop on theย 12th December at 2PM CETย to improve the Virtual Platform Portal, a web interface for finding and accessing rare disease resources.
They would like to work with a small group of clinical researchers who regularly search for and use rare disease resources like biobanks, patient registries, and datasets in their everyday work.
Using a user-centred design approach, this workshop will help the EJP RD to assess the usability of the VP Portal by identifying usability strengths and weaknesses and gathering user feedback, and to help guide further development and feature prioritisation.
The workshop will last no more than 3 hours, and be conducted via Microsoft Teams.