About ERN LUNG

Expertise

OUR WORK

patients

clinicians

ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK

News

ERS Panel discussion: Nuts and bolts of long-term Non-Invasive Ventilation modes in children (9 September)

General

DATE: 19 Sep 2023

TIME: 18:00 – 19:00

9 September, 2023 from 18:00–19:00 CEST

This webinar, chaired by Dr Monique Slaats and Prof. Dr Refika Hamutcu Ersu, will discuss:

Fundamentals of Paediatric Home Ventilation: Understanding indications, benefits, and challenges.
Equipment and Technology: Exploring the latest devices, features, and personalised equipment selection.
Patient Selection and Assessment: Criteria for candidate identification, comprehensive evaluations, and personalised care planning.
Monitoring and Safety: Continuous monitoring, alarm systems, and emergency protocols for patient well-being.
Collaborative Care Approach: Highlighting roles of paediatricians, pulmonologists, therapists, nurses, and caregivers.