About ERN LUNG
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ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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Rare Diseases Workshop

DATE:ย  27 Mar 2023 – 28 Mar 2023
TIME: 8:00 – 17:00
ERN Workshop March 2023 - EJP RD

Concept Inherited retinal dystrophies (IRDs) constitute a heterogeneous group of retinal diseases that cause the progressive loss of vision. Genetics of IRDs is very complex making difficult to find the specific mutation, as well as the correct treatment for most of these diseases. Several therapeutic approaches have been developed in order to stop (e.g. gene therapy), slow down (e.g. neuroprotection) retinal degeneration or restore visual function (e.g. artificial devices). The advance of knowledge of IRDs includes implementing diagnostic/diagnosis tools, searching for new effective therapies, transferring basic research to clinical practice, and raising public awareness of IRDs existence. These objectives require the joint and coordinated work of basic researchers, ophthalmologist, neurophysiologists, social workers, patient associations and public administrations.

Aim The workshop will give an update on basic and translational research related to new therapeutic approaches for IRDs. It will bring together European experts and trainees to improve the training of young researchers on IRDs and latest therapies. Participants and speakers will involve representatives from ERN-EYE partners and non-ERN-EYE partners. The workshop will be perfomed in English and delivered by basic researchers, ophthalmologist, patients.ย  It will facilitate collaborations and exchange of ideas between attendees.