General information
The Rare disease (RD) field benefits from national and international multidisciplinary collaborations to face the challenges in research. Access to infrastructures, collaborative research and policy platforms, virtual platforms for data integration are some examples of means to overcome bottlenecks for diagnosis and treatment of RD patients. Biosamples managing is not an exception. The scarcity of biosamples for every RD and the risk of knowledge siloing or information duplication may be overcome by the strengthening of collaboration and dynamism of biosamplesโ circuits including participation of all the stakeholders, to shorten the way and time from bench to bedside.
About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy
The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโs class, please send a letter of motivation to info@ern-lung.eu
ERN-LUNG Online advance system
The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.