Are you an adolescent aged from 12 to 18 years old with an interest in health, biomedical research, healthcare, and children rights?
Are you a patient with a chronic rare disease willing to get the skills to shape the future of research making it more inclusive for younger people?
If yes, this paediatric expert patients training workshop is for you!
The workshop, devoted to 15 paediatric patients in Europe, is organised by the TEDDY European Network of Excellence for Paediatric Research, in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJP RD).
The EJP RD is an EU-funded project aimed at raising the level of knowledge and awareness on rare diseases (RD) research. It namely aims at empowering patients and creating expert patients by providing training materials, workshops and courses on scientific innovation and research.
This year, the paediatric training workshop will take place in Barcelona, Spain, from Wednesday 21st to Friday 23rd June 2023.